pool day

Today i had aquatic therapy and i had so much fun! I felt like i should have been taking notes or something. It was so amazing afterwards i felt great and could walk almost completely normal. It was tiring but so much fun very therapeutic and a great learning experience!I did a report on aquatic therapy in school and to feel the benefits first hand was amazing, i am learning so much being a patient! Enjoy the photos!! all my love

working out



with my physical therapist Sarah and Lisa

home and doing well

I have been home for a while and i am doing great! I feel so much better, and am able to walk so much better. My PT gave me braces to wear on my legs and they help a lot! Exciting news....i am eating! Mostly pasta but i am able to eat quite a lot and drink plenty. Every day that i eat more i get closer to getting this feeding tube out! So i am excited! Great news again My Mom went with me Friday to UW for a scope and my throat has healed dramatically before it was red and scaring and bleeding but it almost looks normal besides a little swelling, and no sign of the tumor or cancer. The Dr. was really pleased with the results. I will have more scans done at Children's to show what the scope can't. This week i have pool therapy yay! and a check up and blood work but no chemo. Every week i go without chemo i get stronger feel better and my walking gets so much better. I am excited to feel somewhat like myself again!! All my love

Mary

In the hosptial again

I was taken to children's hospital via ambulance Sunday morning when i woke with stabbing pains in my stomach. It ended up be a case of Pancreatitis, they talked about removing my gallbladder because i have sludge in my gallbladder that could lead to stones, but at this point a surgery really isn't a plan. All my counts have gone back to normal so they are no as worried. The are reviewing my meds to see if any of them could have caused it. My neuropathy has gotten so bad just in the past few days that i can only walk on my toes...not good my physical therapist was shocked she gave me some boots to put on that i strap on and it helps keep my foot dorsi flexed instead of pointing forward all the time, and we are doing aquatic therapy this week. They have decided to give me a 5 week break from vincristine to help aid getting my gait back and being able to walk. I know what i need to do its just hard when your sick and in pain. I have had many amazing visitors my Mom, Melanie, Cherise, Amber and Tim comes every night. Hopefully i get to go home tomorrow. All my love

C-DIFF

Oh yeah its back....they have given me c-diff again because of the antibiotics and my ANC was so low. I am so pissed mostly because i spend my whole day trying to get to the bathroom in time so i don't poop in my pants...and then i just stay in there for like half an hour, and the cramping holy crap. i am beginning to wonder why i am doing this anymore for a tumor that no longer in my body...my body can only handle so much. But to quit half way through is not my style although its beginning to sound rather temping.

While in the hosptial...

I have been admitted to children's hospital because of an ingrown toe nail...yes thats right an ingrown toe nail. I guess what is normal of everyone else is a big deal for me. While in the ER they gave me an antibiotic that i had a strong reazction to and i had to go on oxygen. I have a feaver and my blood culture came back positive and that means more time in the hospital. While in the hosptial i have been looking at pictures of the past couple months and i thought i would share them with you!

Tim made me a snowflake

In the ICU

Chemo day

On a walk

more chemo

oxygen sensor

exercising with Amber

Thanksgiving

In the hospital

Fiona love

TPN at home

on oxygen after a reaction to antibiotics



I hope you enjoyed the photos i will try to post more, it gets rather boring in the hospital.

chemo tomorrow

Today my dad took me to PT and to get a blood draw for my blood transfusion it turns out my hematocrit went up so i probably won't have one. Physical Therapy has been so helpful and i love it, its the profession i am going into so i find it fun and so interesting. I will have chemo tomorrow it should be short. I am getting better every day and am able to eat more. I am excited to be moving forward and being done in June!!!

chemo today

I had chemo today and everything went well. My neuropathy in my legs is getting really bad and its getting really hard to walk and its very frustrating. I am feeling sick but not awful so i won't complain. I got our wedding invitations in the mail today!! I am so excited to send them out, i can't believe how close July is and i am so excited for June hopefully all goes well and i will be in remission.I can't wait to just go on our honeymoon a week on a beach is just what the Dr orders after this year, but we can't plan to go cause we are not sure how i will feel on the wedding day so we are going to go in August when i hopefully feel completely back to myself, thinking Fiji or Greece. As of current scans and scopes show no sign of a tumor or cancer and that makes me so happy, but of course nervous that it might return someday. I can't wait to get on with my life, i feel like a year has just been wasted and i have been on hold. I am so excited to merry Tim, i am very lucky and through all of this he has been my rock, and done everything and more for me! I feel so blessed to have the family and friends that i do. My hair started to grow back during radiation but is now starting to fall out again due to chemo, for some reason is so emotional this time, i don't want my hair to fall out again! It will grow back after June and hopefully i will be able to keep it for the rest of my life. All my love

Mary