HoME

I am home after a week at children's i have lots of appointments next week. I am just gald to ge in my own bed, i still have a lot of pain buti am so happy to be home. all my love

Mary

Resting after surgery

Surgery went well today they dilated my throat, i could not believe how narrow it was! I am quite uncomfortable but am on lots of pain meds. I will have to have it dilated again in about 2 weeks and depending on how it responds it might need to be done again. They took some tissue to do a biopsy. I also found out that my gall bladder will be removed in about a week or two, they found 3 stones and the pain and high enzyme levels was cased because i was passing a stone. I am in quite a lot of pain and nervous for the blood results to come back about the Fanconi Anemia, it should take about two weeks right around the time the biopsy results are back. I have had lots of visitors my Mom and Dad, Deborah, Amber, Melanie and Cherise and of course i would love more visitors! Enjoy the pictures! All my love

Surgery tomorrow

Tomorrow i will go into surgery to have the stricture in my throat dilated at and they will also remove tissue and due a biopsy. I had some blood drawn today for a test. They are testing to see if i have something called Fanconi Anemia, i googled it and then i had to stop reading about it because i just started to cry. I am hoping its very unlikely that i have it but i guess they want to test anyway. I will be in the hospital for quite a while, they are also discussing removing my gall bladder as well. Lots going on, i go into surgery at noon tomorrow wish me luck. all my love

Mary

Esophageal stricture and pancreatitis

Yesterday day i had my long awaited swallow study done at Seattle Children's. They found quite a large stricture in my throat and part of my throat is very narrow. Afterward i did not feel good, i started to have stabbing pains, Tim's sister Deborah was with me and while i waited in the bathroom because i couldn't move she found a nurse to come help. When she returned to the bathroom i was passed out on the floor, i woke up in the ER with chest pain and well just lots of pain. They did a CT scan to rule out a blood clot in my lungs, and when my blood work came back it turned out i have pancreatitis. I am not allowed to eat or drink. Yesterday they inserted a picc line from my arm to one of the major veins in my neck, i was on some good drugs so the pain wasn't as bad as seeing all of the blood. I will have a couple procedures where i will go under anesthesia and have that area of my throat dilated and possible surgery if needed. I will need a feeding tube put back in because recovering from the procedure can be painful. As far as my pancreas goes, we are waiting for some more scans to see if i have a stone or any other reason for the recurrent pancreatitis. Due to how narrow my part of my throat is my Drs are surprised that i can even swallow clear fluids. Hopefully this can be fixed and my pancreatitis goes back to normal. I would love nothing more than to be able to eat!I will be in the hospital for a while, lots of tests to do, and i can't wait to start getting my throat healed. All my love

Mary