ughh....

I have been having abdominal pain for a couple of weeks, Last week my team decided to test me for c-diff again, no one called so i assumed my pain and discomfort was due to something else. Tim took me to the Er Tues morning around 3:30 due to awful pain and when we arrived we found out that my test was positive. So yeah i have c-diff again for the 4th time 5th maybe or maybe it just never left..i don't know i have been admitted to the hospital and am bored out of my mind already. So we are starting all over again, i can't eat anything. I can have clear liquids yay more jello...ugh how i hate jello. They will do a ct of my abdomen today to see whats going on but it looks like i will be able to go home today or tomorrow. I just want this to go away, like forever and ever hopefully this time works! All my love

Mary

June 24th

I can't believe its only 1 month until the wedding! I am starting to get really excited! My feet are doing great, i don't have casts anymore. I am feeling much better, the weather is finally getting nice out so i have been taking walks and it feels so good to be outside. I still have lots of appointments, but hopefully soon that will all start to fade away. My Dad has been great taking me to my appointments and i miss him when he leaves, my Mom has started a new job within Boeing and is working hard, Tim and I went to Kent to visit her this week cause i hadn't seen her in a week, it was the first time its been more than a week not seeing her since i started treatment and i missed her so much! I have been eating quite a lot lately and it feels good, if i can gain weight this feeding tube might come out very soon, but regardless it is coming out the week before the wedding! All my love

Mary

it's back..

oh yeah my feeding tube is back......the picture was taken before they put it back in. For some reason Tim video taped it...i will not post that!! All my love

Mary

Weight issue

So the past few weeks my feeding tube has seemed to not really be helping, its been running higher than ever and every week i am still losing weight. I am frustrated because it seems to make no sense and no matter what i do i can't seem to gain weight, and it feels like such a dumb problem to have! Saturday morning i woke up and looked down and my feeding tube just fell out! I kinda freaked out and thought we had to go to the ER to get one put back it. Surprisingly enough with Tim's great ability to put food in front of my face every second i have been able to eat more food than i probably have had in the past 5 months. My body seems to not know what to do with all this food. Its a lot harder and i am still needing over 3,200 calories a day. I don't think i am eating that much. It has been kinda nice to be able to eat things i never thought i could and not have a tube in my nose. I have an appointment with my Dr today and have already been warned that they will probably put a feeding tube in again. Maybe if i can have the feeds running and eat what i have been the past few days it will work. Its hard to eat when i have the feeding tube, its almost a crutch it makes me feel full and not have an appetite and when i don't feel like eating well i don't have to....that is if don't want this tube in my nose for the rest of my life. I have to eat someday i have to but maybe when i am at my lowest weight of all time its not the best time. We will see, i will post after my appointment and most likey i will have a tube shoved down my nose again! We went to Whidbey Island to visit family this weekend and had a great time, Tim's sister had a beautiful baby girl this weekend, congrats Rebecca and Brian i can't wait to meet Olivia. All my love

Mary

Time

Its funny how time can go so slow and yet so fast. The little girl i nanny for just turned 4! It seems like just yesterday she was 3 months old and screaming and throwing up all over me..i miss those days! Today i got new casts on my feet are responding and have gained 10 degrees of flexion since i started, my friend Cherise took me today and it was great to catch up, although it would be nice to hang out outside hospital walls. I let Cherise pick the color of the casts and although i love green, the neon bright green casts are starting to hurt my eyes...thanks cheri! Last week i went to the hospital everyday but Friday, and then on Friday i had my dress fiting not ideal with casts on both your legs but it went ok, i love my dress and everyone was so amazing! All my love

Mary

photos of casting,pool time and after surgery

My casts are on and they are purple! I had new ones put on today and they are blue. They are not as awful as i thought, uncomfortable and annoying but manageable. I had a scope done today due to the fact that i am still not able to eat or swallow that much and some pain has returned. Good news everything looks fine besides the obvious swelling infmation and redness, nothing looks out of the ordinary. I still don't have much energy and they don't really want me walking Enjoy the pics!