Going home today

Its Sunday today and i get to go home!! i am so excited i can't wait to go home! I have to say i am not going to miss my roommate! All my love

Mary

Ready to go home!!

I had a good day today! I was so surprised Cherise came to visit me today without calling and we had a great time talking. My clinical instructor/program director from my PTA program came to visit me today and it was so great to see her, and i felt so happy to see her again! My CT, MRI and EKG all came back normal, so good news! I still have to stay until i have 3 negative blood cultures so i should be able to leave on Sunday. Tim has been busy i haven't seem much of him, he is painting our bedroom and shampooing our carpets while i am in the hospital. He has ordered a king sized bed and wants to have it all done before it arrives on Monday. I can't wait to come home to a new painted bedroom and new bed and super clean carpets...so excited! Me being in the hospital gives him time to do things he normally doesn't have time to do, but i just wish he would relax. He will be spending the night with me tonight and i can't wait to see him!! All my love

4:05am

So its 4:05 in the morning and i am not able to sleep. I have to admit sharing a room with a 3 year old is not ideal. Scooby doo has been playing on the TV for 6 hours, its not loud but i can still hear it. She crys every time they come in to do her vitals, they say this machine is just going to hug your arm or i just have to listen to your heart and she freaks out screaming and crying. Right now she is just rambling about something in her high pitched squeaky voice, watching TV and ruffing through a nosiy bag to get some sort of crunchy food that i can hear every bite of. I do feel bad she has some sort of disease or something and it must be so hard to have your child in the hospital but when i am sick i guess i just care less, i am so sleep deprived. I had a hour long MRI today CT scan and EEG done. Also something is wrong with my legs, they are just kind of swollen and by the end of the day i could not walk at all. My knees hurt to touch and the arches of my feet are killing me! I have no idea whats going on, they think it might be part of the infection. I will know a lot more around 9 when the Dr's do their rounds and tell me about my scans and if anything showed up. They are worried about my seizures so i have like bumpers around my bed like a crib. I don't think will have more and the bumpers are a little much but i guess they are being safe. Until tomorrow

Hospital

I spent the night in the hospital last night and the Dr's just made their rounds. I will be here for a couple days, they have to have 3 negative blood cultures before i can go home, today's blood cultures will still probably be positive. They have started me on antibiotics. Normally when i am admitted i get these really nice huge rooms with a couch and tables but i have a shared room this time. I don't mind i know its not a hotel but i am sharing a room with a crying 3 year old is not exactly what i had in mind. Expecially if i have visitors over and she is sleeping or throwing a fit and that seems to be the only 2 things i have seen her do so, we will see! I just hope they can get this infection under control so i can be somewhat healthy again! Hopefully i will get moved to my own room when its less busy, and quiet!! All my love

Mary

Blood Culture and seizures

Yesterday evening i had a seizure and since it is the second one i have had Tim took me to the ER, we stayed until about 4 am. They have put me on anti seizure meds and i will have a EKG done next week. My Dad took me to my appointment today and we talked a lot about the seizure and the medication i will be talking. Afterwards Tim my Dad and Deborah Tim's sister went cake tasting and to pick out the cake. It was a lot of fun designing the cake and picking the flavors. Since i can't eat i really relied on everyones opinion. I think it will turn out great. When i got home i was exhausted from being in the ER and being up all day so i went right to bed. Around 9 Tim got a call that a blood culture they did came back positive and that we had to come in. I have been admitted and they have put me on antibiotics to control the infection. I do not know yet what kind of infection i have or how long i will be in the hospital, but i would love visitors it sure helps the time go by faster! All my love

Mary

Today

Today i went to PT at Childrens, and then i had a follow up at UW and had a scope done. The good news is everything looks great no sign of the tumor or any cancer but lots of inflammation and redness from the radaition. They recorded it for me so i have a DVD of it at home and i will try to post it to my blog. But unless you know a lot about the throat its kinda hard to tell what you are looking at. They told me it is normal to be where i am at not able to eat and that it will take another month or two. Wed i just have blood work and a check up and then the next week i will have a MRI, PET scan, and ct scan and they will evaluate where i am at. That's all for now. All my love

Mary

Lately

I haven't posted in a while. I have become less motivated to post to my blog everyday, because not much is going on. I am still recovering from radiation, and am in quite a lot of pain. Last week i slept almost all day everyday. I do have a 3 week break from chemo that started this week!! I think this will really give me a chance to recover. I will start physical therapy next week and i am so so exicted! Tim is amazing and spends most of his time at home taking care of me and my meds and everything, he is still working full time. The burn on my neck is gone and the skin looks great. I am still on TPN only at night because i am still not able to drink enough or eat at all. Planning the wedding is getting really fun! My wedding planner is amazing and is taking care of almost everything. My Mom came to visit me today it was great seeing her i miss her so much! My friend Cherise came over and modeled the bridesmaid dress for us and we love it! My Mom has really good advice and i am so glad she liked them! Tonight Grey's is on so Cherise and Ally will be over, i love my twins they are the best. Deborah Tim's sister has been such an amazing help, she is renting units for us helping us keep up with cleaning, helping with the wedding its amazing,i love having her to hang out with during the day! So even though i am in a lot of pain and really frustrated that i can't progress anywhere right now i am just so thankful for my friends and family who help me everyday realize that someday hopefully someday soon i will feel good again. All my love

Mary

chemo yesterday

Chemo went well yesterday,they started the bad drug so i was nervous to see how i felt. Today and yesterday i have been kinda sick but not as bad as normal. My Dad took me and it was great to see him. He is so helpful he picks up my meidcation and makes sure that i don't forget to ask questions, its so great having him around. Last night was not a good night for me i was feeling sick and in alot of pain, Tim was getting up a lot and getting me my meds and hot packs and giving me massages, i feel bad because he was late to work today due to the fact that we didn't go to bed until 3am. I am hoping he gets good rest tonight he does so much and needs to slow down sometimes

past few days

Again sorry i haven't posted in a while. I have been doing ok, i am still just in a lot of pain. I am getting really frustrated i am still not able to swallow that well or at least without it hurting immensely. The last time i ate food was on thanksgiving, i am able to drink water slowly. I keep thinking that everyday it will get better but it just seems to be staying the same. I really want to be able to drink and eat food, its really hard. I am still on TPN its not all day long so that helps but it is hard to sleep with my port being accessed. I am just hoping that the pain eases up and i am able to try to eat food. Since its been so long since i have eaten anything i introduce to my stomach i seem to throw up...so its going to be a long road and hopefully tomorrow i will be one step closer! all my love

Mary

chemo yesterday

Chemo yesterday went well, Tim took me. We found out that after next week i have a 3 week break from chemo! Thats amazing to hear, 3 weeks off will be so nice and hopefully will be a good time for recovery. My hematocrit was low so i had a blood transfusion and it took all day. Tim stayed with me, we ended up being at the hospital all day. I do feel a little better but not much. The pain is getting less, it just depends on the day.

Cold

Sorry i haven't posted in a while. I have been in a lot of pain and have started a cold. Its awful when i cough it hurts so bad and i just spit up blood. My pain meds help a lot and i have been sleeping a lot. Not much else is new, our New Years was kinda lame i went to bed at 6:30. Tim is amazing and taking care of me helping me with my meds everyday and waking up at night to get meds or help me if i am in pain. I think his sleep might be lacking, i hope not too much. All my love

Mary