It has been forever since i have posted but for anyone who is still following this blog i thought i should update it! Last month i had my routine CT and MRI scan. After a couple weeks of stress and wondering i had my appointment and my scans a clean, NO cancer. It has been an awful transition from Seattle Children's to Seattle Cancer Care alliance or SCCA as i will refer to it as. They scheduled my scans over a month late only after i had called many times to get them scheduled and have been awful with my follow up care. We have called the nurse practitioner in the sarcoma clinic for two weeks everyday and never received a call back, at my last appointment we mentioned all of these concerns to my Dr. who assured me it wouldn't happen again, at this point i think it is best to transfer my care to another facility that can better manage my follow up care. My scans are the most important part of my follow up care and critical in detecting cancer and i want to not have to worry every three months if they are doing their job. Children's was amazing and i never had to worry, and i don't feel i should have to sacrifice my health because they are not organized enough to at least schedule my appointments in a timely manner and call me back within a reasonable time. It is like pulling teeth..speaking of i have oral surgery on Wed this week to have all four of my wisdom teeth removed. I am so happy...i am sure it won't be bad, all my friends say it is awful but i don't think any of them quite have the experience that i have with pain.
I have had some thyroid issues, it is normal for people to have thyroid issues after radiation it just scares me a little more because your thyroid is right in front of your larynx and that is where i had cancer so i guess i just don't like anything in that area to to be going wrong. Getting my medication right is tricky but i am feeling better not as tired and my hair isn't falling out like it was. Many other changes almost too many to mention, i got a job as a chiropractic assistant in Seattle and i enjoy it! My eating has greatly improved and i am finally above 95 pounds and think i am going to have to start working out soon, i am hoping my stricture stays open for at least a few more months until i have to have another dilation. I very much enjoyed my birthday cake last week, almost a little too much its crazy think i am 26 but feel so blessed that i am hear to celebrate yet another year! When i think of how incredibly lucky i am to be able to live another year it makes me so grateful to have experienced everything even all the pain, frustration, tears and profound sadness just has made life that much more beautiful. Here is to another hopeful cancer free year filled with love happiness and many more memories!! I will post a few recent pictures. All my love
Mary
Beach day
