Thank you!

I just wanted to take the time to say thank you to everyone who made our wedding day so special! To have all of our family and friends at our wedding was amazing. We had the BEST day, we only we wish we could have slowed it down or pressed pause. So many people that we wish we could have talked to longer or had more time. Thank you, we feel so lucky to be surrounded with such loving family and friends we could have not asked for more!

With all the wedding stuff and excitement i almost forgot what time of year it was. It was July 23rd 2009 when i went to Harborview ER after months of pain and wondering and found out the news i will never forget. A hypopharyngeal mass in my throat that appeared to be cancer. On August 3rd what we had been waiting for...the results of my biopsy and a diagnosis of embryonal rhabdomyosarcoma. Time almost seemed to stop, in that moment i couldn't breathe and all of my fears all at once became reality. It has been an amazing year, but it wasn't me...it was all of you that brought me so much closer to life, love and everything in between. I am so grateful for life, family, and my husband (finally) and friends that showed me that sometimes the worst of times can really be the best of times! All my love, THANK YOU!

Mary

Bridesmaid lunch

Birthday week

This week is what Tim and i call birthday week. Tim's Dad's birthday is the 14th mine is the 15th Tim's birthday is the 16th my Grandma Ann's is the 17th and Lilly's birthday is the 18th. Then a hundred more birthdays in July that we cannot keep track of, but enjoy it just the same. We will now have a wedding anniversary in July as well..i guess i will just get one really huge present each year..right?? I have a Dr's appointment on my birthday, not really how i imagined it, i guess it just wouldn't be the same if i didn't spend part of my day at Children's hospital i guess i couldn't ask for a better present than knowing i am getting better every single day. We don't have anything big planned, just to hang out watch a movie and relax. When i think of the past year and all that has changed..and all that hasn't, its been hard, challenging, motivating, tiring but i wouldn't change a thing! Ready for 25 and the years ahead! Nothing is really better than just spending our birthdays together! I just decided to post old pictures of years past of Tim and I, enjoy. All my love

Mary

Home!

I was released from the hospital Thursday and am so glad to be home! I still can't believe that this is still a problem but grateful to at least know what is going on. It all makes so much sense, not being able to gain weight and the abdominal pain although i am still surprised. I am a little frustrated to find out that no one called to tell me that the test result was positive especially when i have had so many problems with this, this why i stopped treatment early..this is why i was in the ICU twice. I guess someone wrote in the medical notes that i was getting married soon, i was so confused why every doctor and nurse that walked into my room would ask me about it. By the end i was just ready to scream i could not talk about the wedding one more time, or hear the response "how fun" or "when is the date" it was driving me crazy! I think they thought i was just not excited or something, and i got weird looks when i would just roll my eyes and respond so unenthusiastically and Tim would just laugh. Its funny people think Tim is my Dad sometimes...a little weird but ok, a couple weeks ago he had to get a new badge for Children's and he showed it to me and they changed his title from "caregiver" to "parent"...great! I am just glad to be home and am just hoping that this medication works very soon! All my love
Mary

ughh....

I have been having abdominal pain for a couple of weeks, Last week my team decided to test me for c-diff again, no one called so i assumed my pain and discomfort was due to something else. Tim took me to the Er Tues morning around 3:30 due to awful pain and when we arrived we found out that my test was positive. So yeah i have c-diff again for the 4th time 5th maybe or maybe it just never left..i don't know i have been admitted to the hospital and am bored out of my mind already. So we are starting all over again, i can't eat anything. I can have clear liquids yay more jello...ugh how i hate jello. They will do a ct of my abdomen today to see whats going on but it looks like i will be able to go home today or tomorrow. I just want this to go away, like forever and ever hopefully this time works! All my love

Mary

June 24th

I can't believe its only 1 month until the wedding! I am starting to get really excited! My feet are doing great, i don't have casts anymore. I am feeling much better, the weather is finally getting nice out so i have been taking walks and it feels so good to be outside. I still have lots of appointments, but hopefully soon that will all start to fade away. My Dad has been great taking me to my appointments and i miss him when he leaves, my Mom has started a new job within Boeing and is working hard, Tim and I went to Kent to visit her this week cause i hadn't seen her in a week, it was the first time its been more than a week not seeing her since i started treatment and i missed her so much! I have been eating quite a lot lately and it feels good, if i can gain weight this feeding tube might come out very soon, but regardless it is coming out the week before the wedding! All my love

Mary

it's back..

oh yeah my feeding tube is back......the picture was taken before they put it back in. For some reason Tim video taped it...i will not post that!! All my love

Mary